The new face of CF

Day 4

Ok so I am sick of this room & looking out of this ONE window. The food sucks & I want something HOMEMADE, not given to me on a tray. The mom's of patients here get to eat for free 3 times a day & that's nice. It would be better if they gave me the money & I got to run across the street to Copeland's.

Jax's breathing is good. He is doing breathing treatments every 2 hours, once a day steroids, another antibiotic, suctioning of his nose. The Dr's are going to watch him today & make a decison about him possibly going home today. I hope so. I miss my bathtub & my bed. The couch here is hard & leather & SMALL. All night the nurses come in for vitals & breathing treatments so I can't sleep. Plus, Landon is sleeping across the room so when he snores, I have to YELL across the room for him to pipe down. Instead of the usual kick to the ribs I usually dish out. =]

We will probably have to go to Tulane tomorrow for his CF doctors to lay eyes on him. That's fine. A little drive to New Orleans won't hurt.

Jax has the most adorable St. Patrick's Day romper to wear....AT HOME. Ugh. I guess he can wear it tomorrow. Who cares, right?

So I guess I will go back to watching the news &stories about AIG & how the government needs to grow some balls & tell those selfish you-know-what's to give the money back.

A mom's dream

Hi I am Dr. Roussa!!

In the hospital. Again.

Quick post: Jax has been hospitilized for pneumonia. I will update more later. It isn't as bad as we thought, but we have to keep a lot of eyes on him.

March Tulane Trip

Today was Jax's every-3-month Tulane visit. & again, he completely surpassed the numbers the Dr's set for him. He weighed in @ 17# 12 oz. (which I think is WRONG bc his pediatricians office had THAT number 2 weeks ago.) He is in the 75th percentile for weight & proportion. This is up from 45% in January. Dr. Hopkins said he is what they want to see a CF baby look like & that developmentally he is "way beyond his chronological age". Him smart.

We were there all of 30 min. Short visits are a good thing. =]

Jax doesn't like elevators, we learned today. He would be fine, then we would step in a elevator & wwwaaaAAHHHHHHH!! I mean, bottom lip out, tears, the whole nine. Then we would get out & he was fine. He has done that a lot lately. Just all of a sudden SCREAM!! & then we go comfort him & then he is ok.

??????

Might be teeth? .I still don't know why the sudden out of nowhere shrill.

Anyway, here a few pictures. A few of his new teef. Yes. TEEF. The rest are from Tulane & him "going to work".

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Little post before bed

Since Easter will be here SOON, I am really excited about Jax's FIRST EASTER! He is getting Spring pictures done @ school & @ Portrait Innovations. The pictures in the studio will be taken with his cousin, Mason....but that's another entry for another day.

Anyway.

I ordered him a Easter basket from Pottery Barn Kids & it arrived today. It came out so cute.

My Wordless Wednesday...a day late

Mr. Jaxon F. Roussa: